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The Resource Center for Disability Advocates | News & Articles | The Advocacy Guide E-Newsletter

The Advocacy Guide

May 2006

This e-newsletter is intended to provide useful information to both individuals and nonprofit organizations to help them more effectively achieve their mission and improve the lives of people with disabilities.

Topics may include fundraising, grant writing, the start-up process, sensitivity training, financial management, technical assistance, independent living, strategic planning, organizational management and the legislative process.

Workshop Attendees Share Their Thoughts

During the months of January, February and March 2006, the Resource Center for Disability Advocates, provided six free overview workshops across the state of Pennsylvania. The overview workshops focused on the basic areas of advocacy. Individuals from various organizations and groups attended the workshops and provided positive responses when asked their thoughts.

"I appreciated that the presenter asked people in the audience what they do when faced with a particular issue, rather than presenting him as having all the answers."

"I really liked the organizing for success part and I feel I can take this back to my organization and review all the components."

"I am clearer about how to confront Congress men and women in attempts for advocating."

"I appreciated the real life examples, group participation and activities."

"I appreciated the networking experience."

"I am clearer about the importance of clear communication within a group when talking to legislators and the media."

To learn more about upcoming free overview workshops or to request a free training specific to your group or organization's needs, contact The Resource Center for Disability Advocates at 717-731-1900 ext. 25.

Upcoming Conferences
(Pennsylvania, Maryland, Washington D.C.)

World of Possibilities Disabilities Expo
May 19-21, 2006
Maryland State Fairgrounds
Timonium, Maryland

6th Annual Freedom March
June 6, 2006
Hilton Harrisburg Hotel
Harrisburg, PA
Contact SFO: 610-825-4592

Wrightslaw: From Emotions to Advocacy
June 7, 2006
Ramada Inn
20 Public Square
Wilkes-Barre, PA 18702

Society for Disability Studies 19th Annual Conference
June 14-17, 2006
Washington, D.C.
Tel: 312-996-4664

Annual Housing Services Conference
June 19-21, 2006
Hilton Harrisburg Hotel
Harrisburg, PA

National Marfan Foundation
July 6-9, 2006
Loews Philadelphia Hotel
Philadelphia, PA

2006 National Autism Conference
July 31-August 4, 2006
The Penn Stater Conference Center Hotel
State College, PA

2006 7th Biennial Statewide Independent Living Conference
September 7-10, 2006
Hilton Harrisburg Hotel
Harrisburg, PA
Tel: 717-497-4305
or 717-805-5565

World Congress and Exposition on Disabilities
November 17-19, 2006
Pennsylvania Convention Center
Philadelphia, PA

Requesting Assistance in the Funding of Assistive Technology

According to Parents, Let's Unite for Kids (www.pluk.org), assistive technology can be anything homemade, purchased from the shelf, modified, or commercially available, which is then used to help an individual perform a task of daily living.

Depending on the device, the cost can be high. How should a person with a disability prepare for requesting assistance with funding?

According to www.abledata.com, before you request assistance for funding the device, determine what exactly you need in terms of assistive technology. Newly disabled individuals may need to seek a consultant to determine the type of technology needed, while people with long-term disabilities, may be familiar and just need an updated version of the equipment. If a new version of your technology piece is needed, determine the specific item required, including the make, model, manufacturer, etc.

No matter whom you ask for support with the payment, prepare the following information prior to the request, so you are prepared to answer the questions given by the funding source.

  • What is the primary disability?
  • When was the time of onset?
  • What was the cause of the disability?
  • Do you have a secondary disability?
  • What is the time of onset of the secondary disability?
  • What was the cause of the secondary disability?
  • What is your history of employment?
  • What is the family gross income?
  • What are your monthly expenses? (rent/mortgage payments, utilities, outstanding loans and bills, medical expenses, etc.)
  • Health insurance information
  • Names, ages and relationships of dependents

Statements indicating why you need assistance with payment may be needed depending on the funding source. There are public and private funding sources for assistive technology. Some require a medical person to submit a statement explaining the medical necessity, while other agencies require a demonstration of how the service or technology will enhance your ability to prepare for, get or keep a job, or improve your ability to be independent if employment is not an expected result (www.abledata.com).

Tips on Working with the Media

As an organization, there may have been and probably will be moments when you will talk to the media. According to www.apa.org, some helpful hints when working with the media are:

  • Do not respond to the interviewer's questions on the initial call. Instead, understand the reason for his or her call and ask what the deadline for the story is, so you can call the reporter back with information.
  • Once you are aware that the reporter is interested in interviewing you, be sure you are the correct person to talk to. Is this your knowledge or background?
  • As the interviewee, prepare by developing three to five talking points.
  • Prepare a fact sheet on the topic and send to the reporter before the interview.
  • Do not go off the record.
  • During the interview, keep yourself and the reporter on track by staying to the talking points you've developed.
  • Be concise with your responses and do not volunteer negatives.
  • If being quoted, request to have quotes read back to you.
  • Correct misinformation.

How to Form Your Organization's Board of Directors

According to www.pano.org, Pennsylvania requires every non-profit corporation to have the following officers: President, Treasurer, and Secretary (i.e. officers who perform comparable duties). A single person may hold all three offices.

It is important to remember that you want to gather a board that can work together and accomplish the goals set forth for the board and the organization.

Whether your non-profit organization is just getting its feet wet or your organization has been in existence for many years, remember these helpful hints when forming or recruiting a board of directors. According to www.ehow.com, the steps to follow are:

1) Include the board's rules of operation in the corporate bylaws. Details including the number of board members, expiration of terms, officer positions and meeting conduct are found in this document.

2) Determine job descriptions for the chair/president, vice chair/vice president, committee chair, secretary and treasurer.

3) Once you've established the rules of operation, decide on the skills you're seeking before you begin the recruiting process. For example, if you're unfamiliar with how to market your organization, a marketing executive would be a great candidate for the board.

4) Design a board member application, asking for information on the applicant's career history and experience, reason(s) for wanting to join the board, skills and resources he/she will bring to the board, time available to put towards the organization, and any questions the applicant may have about the position or the organization.

5) Recruit applicants through networking, word of mouth, churches, leaders of the community and businesses, publicize positions in community newsletters, etc.

6) As applicants apply, maintain the list of candidates, including the skills and time commitment each individual has for the organization.

7) Candidates should be invited by the president of the organization to upcoming meetings, to allow candidates to ask questions and/or understand what his/her role would be sitting on the board.

8) According to www.americanexpress.com, the size of the board depends on the size of the organization and the goals of the organization. The smaller the board, the more likely it is to operate efficiently because it's small enough to work together. However, an exception to this is if the small organization is going public and needs a larger board to guide the organization through the process.

9) During the formation of the board and once the board has been established, clarify the board's responsibilities and remember to ensure the board stays committed to the responsibilities. Responsibilities include: defining and following through with the organization's mission, enhancing the organization's public image, creating positive awareness, raising money, managing resources, and ensuring effective planning.

If you need additional information on any of these topics, please contact:

The Resource Center for Disability Advocates
Provided by Independent Living Consultant Services
207 House Avenue, Suite 107, Camp Hill, PA 17011-2308

Local
(717) 731-1900
(717) 737-1335 (TTY)
Toll Free
(800) 323-6060
(800) 829-7404 (TTY)

This program is funded in part through the Pennsylvania Developmental Disabilities Council.